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Helpful Links and Information on PFVS

I am just getting started so bare with me. I will add to this page as we receive further information.

Family Connect             http://www.familyconnect.org/parentsitehome.asp

Family Connect is a great website for parents of children with visual impairments. It was created by American Foundation for the Blind (http://www.afb.org/) and the National Association for Parents of Children with Visual Imapirments (http://www.spedex.com/napvi/).

Wonderbaby                  http://www.wonderbaby.org/

WonderBaby.org, a project funded by Perkins School for the Blind, is dedicated to helping parents of young children with vision impairments as well as children with multiple disabilities. Here you'll find a database of articles written by parents who want to share with others what they've learned about playing with and teaching a blind child, as well as links to meaningful resources and ways to connect with other families.

Thomas Marshall Does it All                http://thomasmarshalldoesitall.blogspot.com/p/links.html

This blog is by a woman named Jessica that is such an inspiration. A friend of mine found her blog while doing research on Max's condition. It brought much relief and hope to our family. Her son Tom is a sweet little fella with Persistant Fetal Vasculature. I have learned so much from this blog and Jessica inspired me to start my own blog for Max. THANK YOU JESSICA and TOM!!!!

Bilateral persistent fetal vasculature: a study of 11 cases.            http://www.ncbi.nlm.nih.gov/pubmed/20736126


rutherfordcountync.org -NC Services for the Blind

Products for Visually Impaired Children
http://www.lowvision.org/products__for_visually_impaired_.htm

Blind Children's Resource Center
http://www.blindchildren.org/

Resources for Parents of Blind Children
http://bvi.growingstrong.org/